It took me a while to get out of bed this morning. I used 2 spoons so far and I have yet to try to get dressed out of my PJs. That will take a whole 3 or 4 more spoons. Maybe 5. I may just go back to bed for all I know. Fatigue is hard on me today. It takes so much energy to just eat a meal. If you don't understand the "Spoons" or "spoony", just google it. I haven't the energy to explain it to y'all. Yeah, lupus is a bitch.
Anywho, I just wanted to come online and let y'all know I'm going to have to cut back on my posting. I broke the first and second rules of lupus when I started posting and doing housework again.
1)"Thou shalt not go whole hog after recovering."
2)"Pace thyself or thou shalt pay a hefty price."
I did just that. I cleaned the house. Posted almost every day on this blog and then went crazy and finished pulling weeds in the gardens while washing 3 loads of laundry. I should have paced myself as the rules stated but I felt SO FREAKING GOOD that I blew it and now I'm paying the heavy price yet again. I am sooooo damned tired. Did I mention I started typing this blog post almost 2 hours ago? I keep having to stop because my shoulders and arms hurt. GAH!! My kingdom for a strong spider to take over this work.
Well, I'm out for a while again until I can function. Y'all take care and stay safe.
8 comments:
So sorry! Take all the time you need.
I never clean the house all at once; my method is now one room at a time and leave the vacuum in the cleaned room! Took a shower this morning so that's it for me for hours due to lack of spoons. Bummer to the max but we weren't given a choice, were we?
That's a bummer, Leanna. Rest up and get your energy reserves filled again, my friend. Hugs!
Leanna, I send you my best vibes and my hope for a swift recovery. The human body can be a bitch of a mistress! That nasty trick of letting you finally feel good for a time, almost like the chronic crap is gone, and then slapping you down for it is really the worst! Come back to us when you can (slowly and carefully). We'll be here! 💝
Our comunity nurse 48 years ago had lupus. At the time she was not expected to live long but meds worked well. I lost touch with her 25 years ago and need to look for her again. Please take care of yourself
I’m so sorry. I totally understand. I’ve been low on spoons as well. We are our own worst enemies. But things need to get done. Rest up and restock your spoons
just take as much time as you need to get better.
💐 Hi, Leanna, hope the rebuild of your energy is moving apace! At your bidding, I finally looked up the "spoons" theory. Whoa! I've been a spoonie for 20 years and never knew the term. I have always told people that "the monster is chewing on my ass today" and they have grown patient with me! Spoonie almost feels like too nice a way to describe how my body limits me! My monster's real name is "idiopathic peripheral neuropathy" and he requires a large dose of Belbuca (kind of a safer fentanyl) every 12 hours or the nerve endings in my extremities are tingling so crazily, I cannot control my movements! Oops, I didn't mean to go on about me, but it does feel nice to feel I'm part of a chronic pain community that can understand. Spoonie rock! 🥰✊
Yep darlin, you are definitely a spoonie. It may not be the same disease but it has similar disadvantages.
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