I watched Jen's documentary film on PBS. It's a documentary about how she is coping with this disease, ME-CSF. Please watch her documentary, Unrest.
Get this fucking house off of me!!! And who stole my red shoes?!?
Get this fucking house off of me!!! And who stole my red shoes?!?
4 comments:
Loved it. My daughter has been talking about the problem of women not being heard by the medical community. I thought that’s a shame but it’s never happened to me but remembered that that was not completely true. My OB ignored me forever. It wasn’t until I saw his new PA and she asked me three times why I hadn’t been treated that I realized she was incredulous that he had let it go on so long.
I watched it on PBS this morning. It's very eye opening, heart wrenching, and informative. Towards the end, a lady I am friends with on FB was in one of the quick chat clips. I cried when I saw her. I cried periodically throughout the whole hour and a half. Last year, after periodic visits since 2015, my doctor finally said I had chronic pain. I kept trying to tell him about this pain I was having and he would say it was just a pinched nerve. When I asked him though if I possibly had Fibro, he would only say maybe and changed the subject.
As far as medical practices go, this is my only option with no insurance and they charge on a sliding scale fee. My only option would be to change offices, but there is no guarantee I'd be heard at a different one.
I don't have ME/CFS, but I could relate to some of what was said. Especially about the stigma, the 'hysteria', being a hypochondriac, etc. My aunt died of MS years ago, and I can remember how family members would claim she was faking for attention. I can only imagine how she must have felt.
I highly recommend that everyone watch UNREST.
Bless her heart! What a courageous, beautiful young lady! This was so moving and so eye opening! Thank you Leeanna!
i watched it on my firestick
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